Case Studies Transparency

 

Processing of health data

The complainant was a member of an income protection insurance scheme and had taken a leave of absence from work due to illness. The income protection scheme was organised by the complainant’s employer. In order to claim under the scheme, the complainant was required to attend medical appointments organised by an insurance company. Information relating to the complainant’s illness was shared by the complainant with the insurance company only. However, a third-party company (whose involvement in the claim was not known to the complainant) forwarded information to the complainant’s employer regarding medical appointments that the complainant was required to attend. The information included the area of specialism of the doctors in question.

It was established that the insurance company was the data controller as it controlled the contents and use of the complainant’s personal data for the purposes of managing and administering the complainant’s claim under the insurance scheme . The data in question included details of the complainant’s illness, scheduled medical appointments and proposed treatment and was deemed to be personal data because the complainant could be identified from it and it related to the complainant as an individual .

During the course of the investigation, the data controller argued that the complainant had signed a form, which contained a statement confirming that the complainant gave consent to the data controller seeking information regarding the complainant’s illness . When asked by the DPC to clarify why it had shared the information regarding the complainant’s medical appointments with the third-party company (who was the broker of the insurance scheme), the data controller advised it had done so to update the broker and to ensure that matters would progress swiftly .

The data controller stated it had a legislative obligation to provide the complainant with certain information . In particular, that the data controller was obliged to inform the complainant as to the recipients or categories of recipients of the complainant’s personal data . The DPC pointed out that, while the data controller had notified the complainant that it might seek personal data relating to them, it had failed to provide sufficient information to the complainant as regards the recipients of the complainant’s personal data .

Data protection legislation also requires that data, which are kept by a data controller, be adequate, relevant and limited to what is necessary in relation to the purposes for which the data were collected . The DPC examined the reason given by the data controller for disclosing information about the nature of the complainant’s medical appointments (i .e . to update the broker and to ensure matters progressed smoothly) . The DPC was of the view that it was excessive for the data controller to disclose information regarding the specific nature of the medical appointments, including the specialisms of the doctors in question, to the third party company .

The DPC pointed out that, under data protection legislation, data concerning health is afforded additional protection . The DPC was of the view that, because the information disclosed by the data controller included details of the specialisms of the doctors involved, it indicated the possible nature of the complainant’s illness and thus benefitted from that additional protection.

The DPC confirmed that, because of the additional protection, there was a prohibition on processing the data in question, unless one of a number of specified conditions applied . For example (and of relevance here), the personal data concerning health could be legally processed if the complainant’s explicit consent to the processing was provided to the data controller . The DPC then considered whether the complainant signing the claim form (containing the paragraph about consent to the data controller seeking information, as described above) could be said to constitute explicit consent to the processing (disclosure) of the information relating to the complainant’s medical appointments . The DPC noted that it could be said that the complainant’s explicit consent had been given to the seeking of such information by the data controller . However, the complainant had not given their explicit consent to the giving of such information by the data controller to third parties . On this basis, the DPC held that a further contravention of the legislation had been committed by the data controller in this regard .

Under Article 13 of the GDPR, where personal data are collected from a data subjects, the data controller is required to provide the data subject with certain information at the time the personal data are obtained, such as the identity and contact details of the data controller and, where applicable, its Data Protection Officer, the purpose and legal basis for the processing and the recipients of the data, if any, as well as information regarding the data subject’s rights . This information is intended to ensure that personal data are processed fairly and transparently . Where the personal data have been obtained otherwise than from the data subject themselves, additional information is required to be provided to the data subject under Article 14 of the GDPR . This information must be given in a concise, transparent, intelligible and easily accessible form .

Additionally, the data minimisation principle under Article 5(1)(c) requires that personal data be adequate, relevant and limited to what is necessary in relation to the purposes for which they are processed . This means that the period for which personal data are stored should be limited to a strict minimum and that personal data should be processed only if the purpose of the processing could not reasonably be fulfilled by other means.

Finally, data controllers should note that personal data concerning health is considered a “special category of personal data” under Article 9 of the GDPR and is subject to specific rules, in recognition of its particularly sensitive nature and the particular risk to the fundamental rights and freedoms of data subjects which could be created by the processing of such data . The processing of medical data is only permitted in certain cases as provided for in Article 9(2) of the GDPR and sections 45 to 54 of the Data Protection Act 2018, such as where the data subject has given explicit consent to the processing for one or more specified purposes.